PPA2: Rare Genetic Conditions – Danielle Green’s Story

In this episode of “From the Heart,” join our host, Sami, for a conversation with Danielle Green.

Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2.

Sami and Danielle chat about Danielle and her husband Leon’s journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of times.

A content warning: This episode will touch on grief, and bereavement that some may find challenging.
If you choose to listen, please listen in a safe space and remember you can pause if you need to. 

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